Crohn's and every little magical moment that comes along with having it. Prepare for sarcasm at its finest.
Tuesday, 8 May 2012
Float like a Butterfly, Sting like a Bee!
Exactly what it says on the tin. I haven't decided yet whether I'm actually going to be able to concentrate long enough to write this post! I've already made about five spelling mistakes and seeing as the longest word has been about three syllables, it's not looking good!
So two weeks ago, I'm sitting at home, la de da, wondering- What will my next blog post be about?
Well JAYSUS! There was no need to give me so much material.
I usually operate my blog posts better/ slightly clearer/ more direction when I have specifics. The elemental diet for instance! One day at a time- easy!
I'll start as I mean to go on! Bare with me- parts may be confusing. I get distracted by shiny things now. I'll explain in due time!
Two weeks ago:
Just came runner up in the Miss Louth Competition, eating breakfast, completely not wearing my sash.... develop a temperature.
I had been up to my splendid IBD clinic the week before, shown them my lumpy legs, informed them of all the necessities that come with having Crohn's- pains/bowel movements/ energy levels. I looked great (sarcasm).
They didn't seem overly concerned- 'We'll start you on the Humira again, watch out for the obvious signals when being on it'. I was a bold puppy. I had already taken an injection of Humira. I was crunched over further than Quasi himself a few days previous, I needed DRUGS! So I was already on the look out for 'signals' that perhaps the Humira wasn't being received well!
Obvious signals that something is wrong, taken from the Humira website:
Remember, tell your doctor right away if you have an infection or symptoms of an infection, including:
Fever, sweats, or chills
Shortness of breath
Blood in phlegm
Warm, red, or painful skin or sores on your body
Diarrhea or stomach pain
Burning when you urinate
Urinating more often than normal
Feeling very tired
By Wednesday, I have every single symptom. Bit awkward.
I rang my doctors and got the 'Get to A&E' talk. Got to A&E, admitted that day and kept in for 10 days.
The Crohn's Days: (1-3)
Sarah, you could have one of three things.
It could be a Crohn's flare up.
It could be a virus that you've caught from being on the immunosuppressant Humira.
It could be an allergic reaction to Humira.
Sarah, until we find out what it is, we can't actually treat you.
If we give you steroids, we could be worsening the infection.
If we give you antibiotics, that will worsen the virus.
If we give you Humira, you will get worse.
By day three they'd decided that TO HELL WITH ALL THAT, we'll give her everything!
The Crohn's eventually give up, took into account that it will be drugged for the foreseeable future and decided to die with pride! Hurray! We'll move you to a ward, for the night, monitor you, send you home with steroids for a month (sigh) and get you controlled on the Humira again.
Not so much.
The Heart Days: (3-10)
Brought up to a ward, after being in A&E isolation- room without a window, being approached by doctors in aprons and gloves whose natural scent I can only assume is Detol by now. The ward was a delightful change! Private room, telly, a view! I could easily handle a night here!
Needle goes in, blood pressure is read and then they take my pulse.
42 beats per minute. Bradycardia. FABULOUS.
2 injections of Atropine to speed up the ticker, a gloriously unpleasant experience. 8 ECG's. 1 Holster monitor for 3 days.
ZERO ECHO'S and a highly pissed off cardio team.
Cardio team to Echo team: SHE NEEDS AN ECHO.
Echo team: ... Not so much.
Being in isolation may get you a gammon steak with copious amounts of jelly and ice-cream, but it also gets you put to the bottom of the list for any in hospital procedures to 'CONTAIN THE VIRUS THAT IS ME'.
They eventually agreed to send me home when they said I was no longer infectious (Always good to know!)! I think it was the sobbing in front of the doctors that did it. Although she seemed pretty unrelenting when saying she'd love to send me home, but as there is no one to resuscitate me should anything go wrong, she'd feel more comfortable having me in the hospital. Bed side manner- 100%.
Highlight of my stay:
When the cardio team compared me to Muhammad Ali. Resting heart rate of 32 bpm. Tank.
Currently experiencing a whole host of Prednisone side effects, one of the main ones, an inability to concentrate